Chronic daily headaches and chronic migraines
by Cheryl
(Hampton, NH, USA)
I have had chronic daily headaches and chronic migraines for the past 20 years. I wake up eveyday with a headache and go to bed everyday with a headache. I remember my first migraine at age 6. They didn't call it a migraine because I didn't go to the doctor. I've had them infrequently until my 20's. They began to get more frequent and more severe. Days when I could not get out of bed, nausea, vomiting, light and noise were intolerable. I had one of those migraines for 21 days and ended up in the hospital because I couldn't eat or drink anything and I got terribly sick and dehydrated. I worked with a headache clinic at one of the most respected hospitals in the country for 6 years. I tried at least 35 different drugs, I had nerve blocks, I had a thorazine protocol twice, I had bilateral temporal artery biopsies, CT scans and MRIs. I saw an ENT, a Rheumatologist, and Allergist. I had acupuncture, accupressure, I saw an herbalist monk for a year, I had craniosacral massage. No one has been able to help me. When the neurologists couldn't help me they sent me to the pain clinic. They put me on methadone and some other narcotic but they only worked a little bit for a short time. Needless to say I also suffer from depression and have also tried many of those medications in hope that it would help the headaches. I even had 14 sessions of ECT in the hope that it would help but it didn't. Right now I am on 10 different medications, my neurologist just started me on Verapamil to see if the combination of that and the other meds I'm on will help. I don't have a lot of hope about it because I'm afraid to get my hopes up to be disappointed yet again. So, I take it one day at a time, sometimes one moment at a time and I have learned to live with my daily headaches because life goes on whether I have a headache or not, but it's very difficult to wake up every morning and hope it's not going to be one of my really bad days. On my really bad days the headache wakes me up. I really hate those.